Health Update - June 2023
Added 2023-06-22 20:35:15 +0000 UTCHello everyone. In this video you will get a small update on Dianna's PICC line. It is used to give her medications and fluids for hydration without her having an adverse reaction to it.
OVERALL HEALTH - Dianna is still daily bed ridden, barely able to move. For the past month or so, she has had her ups and downs. Dianna continues to have short windows of time where she can talk for a couple minutes, or maybe play a short tune on her tiny piano. These short positive times are usually followed by a crash for the remaining few days to a week.
For anyone a little new to her situation - She has her daily long chronic fatigue, as well as her MCAS which is causing her to have allergies to essentially and everything you can think of. Artificial smells cause her brain fog, and a long list of physical issues. Also 99% of all foods cause her body to react in poor ways.
(Direct from Levi, her editor and videographer) This month I've had started helping Kyle care-take for Dianna full time. I must say, though I know her situation, it is a completely different experience being here all day. She genuinely has been in a dark room, for many months, with no stimulation, and nothing to do but "try to recover". She does not watch TV, or read, and she can barely sleep. She's awake all day in a room while Kyle, me, and others help her get her food, medications, clean laundry, etc. (She cannot have stimulation of any kind or else her body crashes really hard). I wish I could articulate how surreal this whole thing is. But it is hard to describe what it is like actually being here and seeing someone not only in such poor health, but with no fun outlets and hardly and end in sight.
Dianna's family and friends visit when they can, and there is a lot of hope in the air. We get little glimpses of the old Dianna when she is feeling better and making jokes. It really brightens up everyone's week, even if they are only for tiny periods during the month. We all plan to be at her side while she see's this thing through. None of this has killed her silly sense of humor. We'll have Dianna back some day, hopefully explaining to us the science about this whole thing.
Thanks everyone.
Comments
Here’s what I found on the CDC’s page on ME/CFS symptoms (I’d post a link but I’m not sure what all is appropriate for posting on patreon yet since I’m new around these parts!): Worsening of ME/CFS symptoms after physical or mental activity that would not have caused a problem before illness. This is known as post-exertional malaise (PEM). People with ME/CFS often describe this experience as a “crash,” “relapse,” or “collapse.” During PEM, any ME/CFS symptoms may get worse or first appear, including difficulty thinking, problems sleeping, sore throat, headaches, feeling dizzy, or severe tiredness. It may take days, weeks, or longer to recover from a crash. Sometimes patients may be house-bound or even completely bed-bound during crashes. People with ME/CFS may not be able to predict what will cause a crash or how long it will last.
JessScreams
2023-09-20 06:52:21 +0000 UTCCan you explain what a "crash" is?
Jim DeArras
2023-08-17 12:49:04 +0000 UTCPlease get well soon. We need more physics! (from one physics nerd to another)
Howard Schoeberlein
2023-08-14 21:54:48 +0000 UTCThere is a physicist who is treating long-covid patients and seems to have successes. Maybe you already know her. It is PD Dr. Dr. Bettina Hohberger and she treated them with BC007 from Berlin Cures in Erlangen. Meanwhile the clinical studies are beginning. (https://www.faz.net/aktuell/wirtschaft/unternehmen/studie-fuer-das-long-covid-mittel-bc007-ist-finanziert-18390943.html, https://taz.de/Medikament-gegen-Long-Covid/!5935657/, there is even information about this on the site of a German ministery: https://www.gesundheitsforschung-bmbf.de/de/recover-ein-neuer-wirkstoff-im-fokus-gegen-long-covid-14822.php ) Maybe you already know all this ....? I hope that this can help you too and that Dianna will be better soon!! <3
Andrea Ballhause
2023-08-14 14:46:24 +0000 UTCThanks Levi! You, too, are a rockstar and an awesome friend. I forgot to name you in my comment to today’s (7/30/23) post from Dianna on Twitter(!) and I want to fix that now 🏆💙🎉📹
Stefanie Ray y Velarde
2023-07-30 18:10:36 +0000 UTCHoping as always this is a step forward towards her recovery! Glad to hear she is at least cracking the odd joke now and again, that shows tremendous resilience. You are all doing an amazing job taking care of her.
Roy
2023-07-30 03:01:20 +0000 UTCget well soon!
Suhani Sunder
2023-07-28 02:12:49 +0000 UTCGet well soon!
Damien
2023-07-27 16:00:19 +0000 UTCplease get well
Rickerr
2023-07-26 06:37:01 +0000 UTCFrom a COVID alert service I just learned about this today (July 22, 2023): Amygdala and Insula Retraining (AIR) Significantly Reduces Fatigue and Increases Energy in People with Long COVID Evidence-based Complementary & Alternative Medicine (eCAM). http://dx.doi.org/10.1155/2023/7068326 I have not read it but the title is encouraging for Dianna. You may want to contact them. At minimum she might be part of a study. Best wishes. Tom Schneider
Thomas Schneider
2023-07-23 05:41:29 +0000 UTCCheering on Dianna and Kyle as usual with introductions to awesome music! Hotel Pools - Palmscapes (Full Album) https://www.youtube.com/watch?v=bTACekXFmWk&t=173s
Richard Pearce
2023-07-21 07:54:23 +0000 UTCKeep kicking ass. Big hugs and positive juju your way.
Gabrielle Bayhi
2023-07-21 03:00:06 +0000 UTCHang in there, Diana, It is hard to believe right now, but it DOES get better, it does go away. that may not make it feel OK right now, but keep hope and hang on to those days where you do feel better. Your fans love you and we miss you. Looking forward to your return to life as we all should know it.
Kellye Just
2023-07-19 23:05:55 +0000 UTCI introduced my daughter to Diana many years ago. While she chose not to follow in science she is working in technology. Diana helped her see that learning can be fun. We continue to pray for her recovery.
brian anzaldua
2023-07-19 20:27:12 +0000 UTCI've been a Physics Girl fan for a long time and just now got caught up with what is going on. Dianna - you are amazing and you'll get through this. Sending lots of love to you and all the wonderful people who are taking care of you...
Andrew Melichar
2023-07-13 12:39:05 +0000 UTCHang in there! We’re here waiting!
Edson Andrade
2023-07-13 06:57:27 +0000 UTCHow do we donate?
Joseph Murphy
2023-07-12 23:20:12 +0000 UTCI miss your adventures and lessons while I wish for complete return of your good health. One of my favorite presentations of yours continues to be your adventure on the submarine in the artic. Immediately impressive you were allowed to do that and so evident how widely appreciated you are. I imagine the entire crew thinks often of you. Get well soon! Dean
Dean P Neuburger
2023-07-12 03:03:34 +0000 UTCThank-you. Lotsa of love and prayers for a full recovery. ❤️❤️❤️BTW, I'm a family doctor in Toronto and can't find any clear helpful way to for people with long COVID-19 to recover. The only small thing with a little but scientifically significant results so far seems to be with Coenzyme Q10 or CoQ10 and about our cells' energy producers call mitochondria. Hope your/Dianna's team is considering everything. Here're a couple of studies. More research is needed. 1) Coenzyme Q10 + alpha lipoic acid for chronic COVID syndrome https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9395797/ 2) High-dose coenzyme Q10 therapy versus placebo in patients with post COVID-19 condition: a randomized, phase 2, crossover trial https://www.thelancet.com/journals/lanepe/article/PIIS2666-7762(22)00235-6/fulltext. It's up to Dianna and her circle of care to decide what to do together. These are just some personal thoughts and not professional advice. Thanks again for the updates. Sincerely, Doug
Douglas Mark
2023-07-11 20:18:37 +0000 UTCThis must be so hard for you all. Hang in there. There's a ton uf us wishing Dianna all the best for her recovery - and my Nanna always said that good things come to those that wait.
Allan Trudgeon
2023-07-10 16:26:24 +0000 UTCI’m really shocked and saddened after learning about your situation today. Instantly became a sponsor as I have really enjoyed your videos and your positive energy. This gave me tears and hit me hard because it is so unfair. Shoutout to those around your who are in it with you. Big hug is sent to you from a garden-chair in Norway.
Eirik Øra
2023-07-09 18:58:09 +0000 UTCAnd all the strength to people taking care of her.
Cheekoo Y
2023-07-08 21:15:08 +0000 UTCPlease please please recover soon. Take your time but just be back please. Wishing you all the best.
Cheekoo Y
2023-07-08 21:13:40 +0000 UTCWishing you all the best healing you can get! It is great to see how much you are loved. Keep your spirits as high as you can, it is the best medicine! Keep those little sense of humor moments coming!
Tim Nelson
2023-07-06 17:27:30 +0000 UTCI really hope she gets well soon;and I'm glad she is still around.
Jonathan Hart
2023-07-05 19:44:22 +0000 UTCBest wishes from Germany… 🤗
Marco Anello
2023-07-05 10:20:15 +0000 UTCThis is such a terrible thing for Dianna and friends and family to have to go through, I can't fathom the pain, anger, and frustration Dianna must be feeling; to go from so productive and creative to a dark, quiet room 24/7. I don't know what to say, I wish I could make it better, or knew the right doctor that had the right treatment. If there is anything she needs that can help her feel better, please don't hesitate to ask.
Steve Victory
2023-07-05 07:47:06 +0000 UTCThinking of you guys down in Australia.
Simon Saunders
2023-07-05 01:55:20 +0000 UTCWhat an unnecessary & rude thing to write here...
Justdunkaroos
2023-07-04 03:23:19 +0000 UTCIna T.
2023-07-04 01:33:39 +0000 UTCSincere thanks for the updates, compadres!
Boyd Nethercott
2023-07-02 20:47:41 +0000 UTC*Say the word* if more funds are needed. Along with many others I, too, could "bump-up" my Patreon membership to help. Oh! Dear Dianna! How want her to be well again!
Boyd Nethercott
2023-07-02 20:45:35 +0000 UTCI thrilled to see Dianna's curiosity piqued by the fluids pulsing - to the beat of her own {magnificent} heart.
Boyd Nethercott
2023-07-02 20:38:01 +0000 UTCKyle and Levi... Dianna's First Knights! Thank you for taking care of our Physics Girl! I'm sure Dianna can't risk reading that many comments during her good times... so I'll just add to the energy. We are all here for you "D", and we are pulling for you to kick this thing in the butt and start teaching us again! I'm am so sad the such a curious mind has to spend most of the day doing nothing.... that has to be insane.. like being trapped in a cage.
TheJaded
2023-07-01 19:13:32 +0000 UTCI"m glad that you found (presumably) an adhesive to hold the PICC line in place that doesn't elicit reactions from Dianna's immune system. I've had PICC lines a few times, and will again soon (for cancer treatment), and tend to develop allergy to those adhesives myself. But I'm relieved to know that Dianna doesn't have to be poked as often with needles now. When I get a PICC line, I amuse myself by saying that I'm being "Borg-ified," as in the cybernetic oranisms in *Star Trek: The Next Generation.* Now I'm also in extra good company, with Dianna being similarly accoutred.
Jean-Philippe Suter
2023-07-01 18:17:34 +0000 UTCThe good thing here is, you can't give up if you're still able to be curious. To me, that's the best news.
Martin Rioux
2023-07-01 15:24:30 +0000 UTChttps://youtube.com/shorts/H3xEbpnv5fo?feature=share
Nicholas Thompson
2023-07-01 02:53:36 +0000 UTCThinking of your collaboration with Jade’s Up and Atom after seeing her latest YouTube short! I hope you feel you can watch it too if you’re reading these words…🎬🎬🎬🎬🎬💯♾☮️💟😘🥰😍🚀🌌🌈〇□🗽🗽🗽🌞🌞🌞…
Nicholas Thompson
2023-07-01 02:53:09 +0000 UTCThanks for the update. Hoping for more good days.
Don
2023-06-30 20:42:23 +0000 UTCI just thought of a silly idea for the upcoming Open Sauce. What if Allen (watching his vid when I thought of it) or really a group of creators work on a Diana cam so she can attend virtually on the shoulder of her friends. Maybe we make it a parrot, or other puppet/animal/fruit whatever, with a cam and mic inside that people can interact with. Different tubers could take turns having the parrot on shoulder or perched nearby. Anyways just an idea. maybe? =] mUcH LoVe =]
Ryan Mooney
2023-06-30 15:00:15 +0000 UTC... a fan just stopped by to give Dianna a hug and to let Kyle know that his dedication is inspiring to all of us. And thanks to the entire support team. Dianna is lucky to have you all.
SeattleDan
2023-06-30 06:00:23 +0000 UTCDianna, keep up the good spirits. There are medical advances every day, and soon, there will be one with your name on it. I wish you all the best. Kyle, you are incredibly dedicated and caring. People will always know this about you. And for this difficult journey, may it always be filled with love and hope and achievement.
McLen
2023-06-29 20:03:40 +0000 UTCDianna, I wish you to enjoy happy physicsing as soon as possible. If only physics could help you how you help to physics to be closer, easier to understand and enjoyable to broad public. If only specific wavelength of light, frequencies of sound/music, temperature, pressure and humidity of air, polarity and intensity of some field, ... could help you to recover faster. When I see the patience and love of your amazing husband to you and the fact that nothing stops your curiosity I know that your comeback is approaching :-)
Ondrej Grulich
2023-06-29 19:18:31 +0000 UTCDianna, I have a young, healthy college son and my mom heart just wants to give you a hug (I know, overstimulation = bad). We’ve been re-watching lots of your videos - so thanks. There aren’t a ton of things that at this age he tolerates doing with mom - chalk one up for Physics 😉😂 We are rooting for you.
Kara Shore
2023-06-28 03:07:25 +0000 UTCOften, you don't know what you're capable of doing until you have to do it. Much love to Dianna and her loving care-givers. I'm visualizing her future videos where she's smiling and explaining all of this to us.
Joanne K
2023-06-28 00:53:01 +0000 UTCThank you for providing this update. Dianna is such a fun, outgoing educator and I miss her impact. I look forward to seeing her improve.
quietssstorm
2023-06-28 00:43:50 +0000 UTCSo important that you are sharing these details. The daily life of chronic illness is so hidden that it hardly seems real to most people. I read this thread describing how one ME/CFS patient devised a way to communicate with her loved ones that took much less energy (small motions of the finger that stood for certain ideas like hot/cold, drink/eat, pain, etc. ). I hope you can find some part of this helpful but I also hope that it will not be needed. 💚💙💜 Kim & Michael thinking of you. https://twitter.com/SabineHermisson/status/1666398559841681408?s=20
Socratica Studios
2023-06-27 21:44:44 +0000 UTCThank you for taking care of her 🥰 we're all rooting for you!
Pato Hondagneu Roig
2023-06-27 20:28:26 +0000 UTCGet well, you wonderful human being. We all believe in and support you. You’re an incredible person, and you’re going to pull through this. You got this. ❤️
Miso Ramen
2023-06-26 23:22:49 +0000 UTCThanks for the update and thank you for taking care of Dianna and being there for her🫂
BenRifkah Bergsten-Buret
2023-06-26 22:23:49 +0000 UTCI will do that. But try to remember my original advice was to not give up, try to find solutions, and fight. The phrase "force your body to handle more than it could before" is not about pretending like you're perfectly healthy. It's advice meant to drive for action. Responders have focused on the exercise bit, but none of you seem to value mental strength. I did also say "mentally engage". The essence of my advice was positive, but you didn't notice it. I think you, and many rational people forget that it is good to try, experiment, stay positive, because you are too comfortable waiting around for all the evidence (that someone else will collect for you...). I will watch your documentaries, and I'm sure will learn something, but it does not seem like you are much concerned with learning from anyone else. I think this ultimately, will likely be a weakness. I'm sorry you've struggled, and I hope you find your way out of what you're in. But no one will save you from your predicament. Your attitude must go along with the medicine. Drive yourself to health. Much love. ❤
Kieran Le Cam
2023-06-26 16:49:42 +0000 UTCMillions of ppl have debilitating and disabling Long Covid, including MCAS and MECFS. Research for these illnesses prior to LC have been woefully underfunded, so options are very limited.
Centralperk
2023-06-26 16:25:19 +0000 UTC💜 millions of us are suffering behind closed doors from LC
Centralperk
2023-06-26 16:20:50 +0000 UTCPlease watch videos on severe MECFS from ME Action, Solve ME, or other advocacy organizations. Watch the documentary Unrest by Jennifer Brea. You will learn why this advice is so bad.
Centralperk
2023-06-26 15:58:03 +0000 UTCLong Covid, MCAS, and MECFS are caused by viral infections and do not respond well to exertion. It will cause PEM/PESE that is disabling and can be permanent. With all due respect, your is horrible “advice” and your presumptive take that what works for most illnesses works for viral illnesses is what’s wrong with the medical establishment. I ignorantly “pushed through” LC for 2 years and drove myself to bedridden. Prayed it wouldn’t be permanent. A year later I am still disabled. A person can’t begin to rebuild exertion until they’ve found a cocktail of meds that will help prop up their body, and reduce systemic inflammation and immune system over-response. There’s no clear cut cocktail, so it takes a ton of trial and error. Likely due to viral persistence.
Centralperk
2023-06-26 15:55:26 +0000 UTCPerhaps you're right. I'm only being pragmatic, because it seems like this is taking a while and going in circles. I know from experience that especially with new diseases, doctors do not always know how to proceed, and it's often up to you to ad lib. It sounds unscientific, but it is simply early science: experimentation. Sometimes failure means you should give up a course of action, sometimes it means the improvement is too negligible to understand as improvement, and you must keep fighting, for a negligible improvement to become a substantial one. Waiting around may work for colds and short term viruses, but for a long term disease, to shorten recovery from say, two decades, to a few years, it may take a healthy amount of stubbornness. All I'm preaching, is to trust not only your doctors, but also dare to trust yourself, and experiment with your own condition, and try to see what works. You may be surprised (or unsurprised) at the results. Of course, everyone is free to choose what is best for them, but every one of our experiences is valuable to each other, including yours, and including mine. I was sharing my own experience. Thank you for sharing yours.
Kieran Le Cam
2023-06-26 06:21:09 +0000 UTCSeeing those eyes again woke me up, get better PG we are all pulling for you.
Ken Bouteiller
2023-06-26 02:25:16 +0000 UTCSuch a long road for her.
Catherine Naghitorabi
2023-06-25 23:57:38 +0000 UTCWhen I was recovering from CMV, which ended up causing Transverse Myelitis, forcing my body to do more each day was exactly what ended up causing the TM to get worse. Generally, yes, exercise is the path to the recovery, but not always. It depends on the person. These days, when I have a virus, I always sleep and rest until it is gone - however long that takes, and then move forward with recovery.
Michael Porter
2023-06-25 23:46:56 +0000 UTCGet well you legend! And huge thank you to her team for support and care.
Legga L
2023-06-25 23:15:10 +0000 UTCSo sad to see slow progress, but on the other hand… progress! If you need anything, please don’t hesitate to ask! We all feel so helpless! Much love to all of you. ❤️
Phil Moyer
2023-06-25 02:40:02 +0000 UTCThank you for helping her heal! Miss you and your team!
CTOCSE8
2023-06-24 20:20:08 +0000 UTCThank you for the video! Still praying for everyone 🙏 ❤️
Quakeprincess22
2023-06-24 18:40:13 +0000 UTCThank you for being there for her.
Disconnected Dan
2023-06-24 14:07:23 +0000 UTCCheering on Physics Girl and Kyle as usual! https://www.youtube.com/watch?v=N66hK6ma55k https://www.youtube.com/watch?v=8obgZM7X0Lc Ps. I guess that this current health update post answers the previous question of intravenous and injection vitamins.
Richard Pearce
2023-06-24 07:41:26 +0000 UTCBriefly, concerning the issue: the virus seems to vampirically take your cells energy. But I'm assuming over time, your body does reduce the presence of the virus, perhaps it can grow again, but there are windows of opportunity. Wouldn't maintaining the fight, maintaining some level of exercise, and occasionally pushing to find your limits, keep everything running as efficiently as possible, so that when your immune system does respond well to the virus, it offers an opportunity to create a positive feedback loop? The only issue is balance. Find *your* max efficiency. But it doesn't happen on its own, it happens by *trying* things and not giving up. You don't need to be a doctor to understand this logic. It's always dangerous when the stakes are high... but what else can you *do* ? Much love, keep up the fight. ❤👊
Kieran Le Cam
2023-06-24 07:25:30 +0000 UTCWith all due respect, did you read your own article till the end? It is mentioned for the average patient, that slowly increasing exercise (implied, depending on the patient) is still, ideally under supervision, the recommend path to recovery. Additionally the message is, like my own, do not give up.
Kieran Le Cam
2023-06-24 06:59:52 +0000 UTCThank you for these updates. Please let her know that I am praying for her and Tso are many others.
David Jeroslow
2023-06-24 03:32:48 +0000 UTCI know this comment comes from a place of love but please know that "force your body to handle more than it did before" is advice that can actively harm many long covid patients. https://www.webmd.com/covid/news/20220803/why-exercise-doesnt-help-people-with-long-covid
Julie of the Shire
2023-06-23 20:41:58 +0000 UTCThank you for these updates. It's sad but good to know how she's doing. I'm glad she has such caring friends who help her. I'm looking forward to the day she is back on her feet.
John N Nelson
2023-06-23 20:28:16 +0000 UTCLove builds the physics of connection between PG Team and supporters. Ok!
Jill
2023-06-23 19:28:09 +0000 UTCDon't only spend time waiting, spend time trying. You may have the solution no one else does. Mentally engage, and try to force your body to handle more than it did before. Try, try, try. Much love. ❤
Kieran Le Cam
2023-06-23 19:00:42 +0000 UTCMy own comparatively mild ME/CFS is what prompted me to join Dianna's Patreon. I am hoping on her behalf for her hastened recovery and also for my own. My own situation is nothing compared to hers and many other sufferers. Knowing what I know makes me feel inordinately concerned for her even though we are not personally acquainted. I have to say, it is great to hear her voice!
Hal Hawkins
2023-06-23 18:01:47 +0000 UTCDianna is so amazing. All of you supporting her are amazing. 💜
Michael Casey
2023-06-23 17:31:42 +0000 UTCI am so appreciative of everyone helping Dianna out. I just wish there was something someone could do to get her over this. I have never heard of anyone having such a difficult time with this. Praying she gets back to her old self soon.
David Rimovsky
2023-06-23 14:57:44 +0000 UTCI use Dianna's videos in my physics and astronomy classes. Every time I do now, I say "Get better Dianna!" We are all pulling for her.
James Lupton
2023-06-23 14:51:53 +0000 UTCit's so reassuring to hear her voice, even if she's exhausted. and i'm glad that nothing stops her curiosity.
cameron
2023-06-23 14:28:19 +0000 UTCSending love, restoration and strength to Dianna and her caregiving team.
Heidi A
2023-06-23 13:55:28 +0000 UTCI know she must be appreciative of everyone who has worked so hard to help her recover. Caregivers are saints in my view. Thank you for the update, and as everyone else does, I hope for a sure and speedy recovery.
Paul B. Hogue
2023-06-23 12:54:37 +0000 UTCI cannot tell you how happy it makes me that she was awake even if it was just for the short duration of the video. Hoping for a speedy recovery :) You've got this!
d'Herbais de Thun Sébastien
2023-06-23 12:50:22 +0000 UTCIt's wonderful to hear her voice, even if only a tiny bit.
Aaron Bono
2023-06-23 12:28:27 +0000 UTC"None of this has killed her silly sense of humor"
TheDig
2023-06-23 11:58:30 +0000 UTCI truly appreciate the updates. I wish nothing but the best for her and a strong recovery.
Grimm Reaper
2023-06-23 11:52:42 +0000 UTCThanks so much for the glimpse. I am glad her curiosity is still with her. May she grow stronger each day.
Chris Bart
2023-06-23 11:35:00 +0000 UTCI'm glad to hear some amount of progress. Also really interesting to see a PICC line where they use a needle in it. Here in New Zealand we have a self-sealing system that our Syringes screw onto that uses a positive pressure system to prevent bacteria or air getting in during the connection or disconnection of it. All the best, both to Diana and to Kyle and Levi!
James Curd
2023-06-23 10:55:35 +0000 UTCI feel heartbroken to see such a beautiful, clever, dynamic person struggling so much for health and energy. I really hope for a quick healing. I reallly admire Dianna and hope the best for her and for her family. J
Jacopo Morganti
2023-06-23 10:38:32 +0000 UTCSo sad to see such an exuberant woman brought so low - sending hugs and love.
Nigel D Perels
2023-06-23 09:32:32 +0000 UTCI echo everything Dr Andy wrote. I had a PICC line for transfusions, antibiotics, blood works and chemo for several months. It had to be flushed, and the area sterilized weekly when it was flushed. I'm not sure what Chris meant about the nurse changing the PICC line. Maybe he meant the line being flushed.
Sasha Rosen
2023-06-23 09:23:23 +0000 UTCStick at it, don't stop believing, this too shall pass. All cliches I know, but you have to believe. Sending healing energy.
Dr Andy Hill
2023-06-23 07:41:29 +0000 UTCStruggling with long Covid myself. Will pass on anything helpful in the way of treatments. A terrible drag, but, still, I think some deep meditation goes on through all the sleepiness and exhaustion, some kind of rearranging of ideas which will ultimately yield deep new insights.
Chris Young
2023-06-23 07:19:08 +0000 UTCThank you for the update, hope she gets better soon. Keep up the good work and stay strong
Itay Habani
2023-06-23 07:07:26 +0000 UTCThese updates are fantastic. Thank you so much. Dianna, we need people like you. We all want you to come back to us. However long it takes, it will be worth it. You are loved and missed. We look forward to a happier future.
Lerenau
2023-06-23 05:00:59 +0000 UTCThanks for the update and all that you all as her supportive team do. Happy to support xx
Parnos
2023-06-23 04:32:04 +0000 UTCThank you for the update. Thinking about what has happened o Dianna always just makes me want to cry. She is so lucky to have you guys helping her. It’s so hard on all of you. Surely with all the research being done they will find a cure for her at some point - we can only hope sooner rather than later. We think my dd has MCAS, but it is nowhere like what DIanna is going through. I’m sure you are doing everything that could possibly help Dianna but pls feel free to contact me directly if you are interested in what my dd was taking for MCAS. Best wishes and kind thoughts -
Margaret Hamilton
2023-06-23 04:28:57 +0000 UTCI hope things get better. But its been a year. It might be time to try something different. Maybe ambien, marijuana, or ecstacy. Something to change the mindset. I apologize if this is too bold
John
2023-06-23 04:14:07 +0000 UTCThank you for the update. I wish there were some sudden and rapid cure discovered for her and others similarly suffering. I'm glad to hear that her sense of humor is still there, able to emerge during moments when she feels better. Much love to her and to you guys who are doing such a great job taking care of her. I'm sure it's exhausting, so take care of yourselves as well.
Amelia Adele T.
2023-06-23 03:45:43 +0000 UTCHoping the best for Diana 🙏
Marcos Vega
2023-06-23 03:38:41 +0000 UTCMake sure the nurse maintains and replaces the PICC line on schedule. My mother's was not, and clustered bacteria would be thrust into the bloodstream with every infusion of meds or fluids.
Chris Barry
2023-06-23 03:25:55 +0000 UTCI continue to pray for Dianna’s recovery and for Kyle as he manages the stress of caregiving. Thanks to Levi for stepping in to help Kyle and for keeping us updated!
Roger
2023-06-23 02:52:37 +0000 UTCSo sorry you are still struggling. Who knew this was even possible. This is only temporary and you will get through this. We are all with you.
Mark Balderrama
2023-06-23 02:42:27 +0000 UTCFingers crossed for speedy recovery!
Navin Weeraratne
2023-06-23 02:37:09 +0000 UTCThanks for the update, Dianna. We all want to see you healthy again.
dino@deanlm.com
2023-06-23 01:45:17 +0000 UTCI am hoping for the best for you Diana. There is a lot of research on mitochondria and the human microbiome. I am betting these areas will be helpful in your recovery. Good luck and keep fighting the good fight.
Bart de Boisblanc
2023-06-23 00:57:15 +0000 UTCMy heart aches for all of you. Your loyal love for Dianna Is beautiful. Truly hope that she will continue to gradually improve. This is a long hard road but hopefully someone will find an effective treatment for her and the many others like her. I will continue to follow her course.
ViolinDancer
2023-06-23 00:55:55 +0000 UTCHi Dianna and Kyle. Thinking of you guys. We may just be internet folks but please know that there are people out here truly rooting for you and we'll be right here for you always, we're not going anywhere. Much love to you both.
Dan
2023-06-23 00:45:13 +0000 UTCIt is really heartbreaking to see and hear about such a vibrant spirit being so debilitated by long COVID. I and my wife continue to wish for a speedy recovery.
John Robinson
2023-06-23 00:38:19 +0000 UTCI am praying for Diana to get better.🙏🙏
Ed Bartkiewicz
2023-06-23 00:33:33 +0000 UTCThoughts are with you all, stay strong. Get well soon Dianna
Edward Bacon
2023-06-23 00:31:20 +0000 UTCThank you for the update! I was personally overjoyed to see Dianna being more active to where she shows her well-known curiosity! I'm also happy to read that Dianna does have more moments of energy than before. Sending you lots of love.
Kooster
2023-06-23 00:16:49 +0000 UTCHang in there, everyone 🙏💕
Savy M
2023-06-22 23:59:03 +0000 UTCThat's the first time in a long time I've heard her voice or seen her move. I see that as a great sign. Also, as for the PCC line, I had one during chemotherapy and I believe it made a huge difference in my recovery time. Thanks for sharing Levi. And to Diana, prayers are going up for you sweetie 🙏
Dana Latta
2023-06-22 23:30:26 +0000 UTCThank you for the update. It's a relief to know that she is being cared for by such loving friends and family, that makes a world of difference. All my best wishes for Dianna and all of you.
Roger Peterson
2023-06-22 23:29:19 +0000 UTCI really hope that researchers will have some break throughs for her and others who are having to deal with this awful by product of the pandemic disease! We are all here for Dianna and all of her friends and family! We have all of you in our thoughts! Stay strong and positive and keep her sillyness as a positive that she will continue to fight and get better! Love you all! 🥰😘♥️
Kimberly Nickerson
2023-06-22 23:03:59 +0000 UTCLots of hopeful research being done, hopefully rendering specific treatments soon! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10224216/
Camela J Hicks Alexander
2023-06-22 22:47:57 +0000 UTCSending strength and love to you all. You have the biggest hearts. With all this support from those around her Dianna must be feeling very loved ❤️
Sarah McKelvey
2023-06-22 22:37:47 +0000 UTCIt's so sad that she's still struggling so bad, but it was wonderful seeing glimpses of the true Dianna, even if it was for just a few seconds, in this video. Wishing you all the best!! We cannot wait for her to get back to her "happy physicsing"!!
Filipe Pereira
2023-06-22 22:28:07 +0000 UTCDianna, stay strong, you will come out the other side of this, eventually your body’s inflammation and reaction will calm down, but I know it’s a marathon. Kyle & Levi, thank you for taking care of her. Too many of us our forgotten. Please consider applying for SSDI for her. And caretaker income for yourself. Sending love & hope. ❤️🩹
Centralperk
2023-06-22 22:25:53 +0000 UTCWe hope that you are able to continue to support Dianna. We hope for the best. Don't forget to apply for any benefits that can help deal with this health crisis - Social Security Disability Insurance, etc. We wish you well.
John Gnassi & Deb Sutliff
2023-06-22 22:25:35 +0000 UTCPrayers going up daily for you. Keep up the fight. We miss you!
Dan Arrington
2023-06-22 22:19:53 +0000 UTCThat last bit though is such a ray of hope! There was still a hint of excitement in her voice at watching the process.
Iana Nelson
2023-06-22 22:18:57 +0000 UTCSending all the positive energy I can for continued recovery. I hope that someday soon that researchers can figure out the systems at work in long COVID and find a way to reverse or limit their impact.
The Awesomer
2023-06-22 22:16:30 +0000 UTCThis is so heartbreaking 😢 Is there really nothing that can be done to help her condition!? I can't even fathom how strong Dianna is for fighting this for so long and continuing to have hope...
Alex Golembeski ツ
2023-06-22 22:15:20 +0000 UTCMy best to you all. Much love.
Rob Tai
2023-06-22 22:07:08 +0000 UTCPoor baby! 😢 Assumptions aren't good. Question everything, push the envelope! https://giphy.com/gifs/AlbertEinstein-einstein-albert-NS7Ai5yTyG5kA
Lawrence Tate
2023-06-22 22:06:54 +0000 UTCThis is so unfortunate and difficult. Perhaps Dianna would be ok to talk to people at NIH, the National Institutes of Health. There are many scientists there working on diseases and perhaps just being part of the science would give here encouragement. https://www.nih.gov/
Thomas Schneider
2023-06-22 22:01:07 +0000 UTCShe is so brave. 💪Keep fighting Dianna. ❤️
Manu Parashar
2023-06-22 21:51:47 +0000 UTCLove you Physics Girl. Holding you in my heart. And sending you lots of love and light. And healing vibes. Much love
lulu
2023-06-22 21:41:25 +0000 UTCSending virtual love!! 💖
Koen Bollen
2023-06-22 21:41:13 +0000 UTCIt's great to hear Dianna speaking so clearly. Slow progress is good progress. Thanks to all of the caregivers and for the video updates.
Steve Brown
2023-06-22 21:39:20 +0000 UTCI love you Physic's Girl, wishing you well.
Richard Morton
2023-06-22 21:36:56 +0000 UTCDianna, as heartbreaking as your situation is, I have to say that this video seemed like an improvement from previous videos. It was nice to hear your voice and see you watch the nurse with your familiar inquisitive eyes. These may be small improvements but it's always good to take even the small victories when you can. One day your fight is going to pay off :)
Robert Evans
2023-06-22 21:33:44 +0000 UTCI can't imagine how hard this must be for everyone involved, but it's so awesome to hear about the lighter moments, and to know that Dianna has kept her curiosity and sense of humour despite all these challenges. We're all rooting for all of you, and looking forward to the day when this begins to pass! Hang in there!
Cole Peters
2023-06-22 21:33:42 +0000 UTCBeing trapped in just your mind is such a hard experience. Though the mind is extremely resilient if you let it be. Working on problems without a pencil and paper is a different experience but it is possible. My chronic fatigue has put me in this state for weeks but not months. When in that state I use the couple minutes I have to take in a physics problem. Then think about it for days until I have 5 minutes I can record my thoughts. Today is today and all we can do is accept the reality of today. Nobody knows what the reality of tomorrow is, but focusing on making it better is a worthy struggle. We are all sending you positive thoughts.
Alex Taylor
2023-06-22 21:22:15 +0000 UTCThank you Levi & Kyle!
Niels van den Boogaard
2023-06-22 21:20:14 +0000 UTCEvery time I see an update in my inbox I get so hopeful. This is so hard to see month after month. I can't imagine what it is like for Dianna and her caretakers to live it. Know that when you send the update saying "Dianna has turn the corner and is feeling better" that we will all still be here. We'll be cheering!
Sue L’Hommedieu
2023-06-22 21:19:33 +0000 UTCSurreal, indescribable suffering is probably the best way to describe what long-haul appears to be to loved ones. To me, it was a profound realization of how immensely a person can suffer and still be alive. I hate that she's living through this, but I'm hoping she gets better faster than my wife did (~2yrs later, I have her back ~100%).
zak t
2023-06-22 21:18:09 +0000 UTCMy prayer are with Dianna and all her caregivers. May the Lord give you all strength to over come this.
Michael Pistey
2023-06-22 21:17:44 +0000 UTCI was diagnosed with MCAS in the last year. However it's plagued me my entire life. Not to the extent of Dianna's case. I personally try to bring awareness of this disorder to as many as I can.
Michael Pistey
2023-06-22 21:16:13 +0000 UTCBest of wishes for a speedy recovery! You are all, every one of you, amazing and wonderful people, and the world is a better place for you being in it! Thank you for everything!
Dan Peterson
2023-06-22 21:13:30 +0000 UTCI was just about to send you some information and this email appeared in my inbox. It was kismet..lol. I am so happy to hear you're feeling more of your silly self 🥰 I know you'll see the other side of this and I can't wait to share in your joy when that happens. I have a client in Miami that owns an herbal medicine practice. She has helped many people with the after effects of Covid. Her name is Dr. Carolyn Cook. I don't know if she can help but maybe it wouldn't hurt for Kyle to chat with her. https://miamiherbs.com/ Sending peace, hugs, and all the good juju!!!
Susan Schaible
2023-06-22 21:09:10 +0000 UTCThanks for the continued updates; return to better health sooner than later hero PhysicsGirl!! 😻♥️😻♥️
Hacim Llih
2023-06-22 21:09:00 +0000 UTCThis breaks my heart. She is lucky to have you both. Hoping for some good news soon in terms of recovery 🤞
T W
2023-06-22 21:08:50 +0000 UTCSending the biggest, most supportive hugs to you all.
Michael Kobb
2023-06-22 21:08:28 +0000 UTCCuriosity is good. Mind and body are strong.
Quasijoe
2023-06-22 21:08:22 +0000 UTCSo painful to watch, and to think you all have been doing this for so long is heartbreaking. Can’t wait to see you fight this off and leave that dark room behind 💪🏼
Dave Bennett
2023-06-22 21:07:39 +0000 UTCMy thoughts are with you Dianna, and your caregivers, every day. The world misses you, I miss you. Hope you turn a real corner soon.
Gregory Gentile
2023-06-22 21:06:59 +0000 UTCMuch love and hope to you all. I look forward to the day when this time is a bad memory
Ian Date
2023-06-22 21:05:36 +0000 UTCjust beyond comprehension,,
TomT
2023-06-22 21:04:45 +0000 UTCBest wishes for Dianna, you caretakers, and her medical staff!
Timothy p smith
2023-06-22 21:00:36 +0000 UTCI can't wait for the day when she can look back through all the things her wonderful community has said in support of her over these months. It is seeming closer and closer. Even if it is still far off. Hang in there team!
Suzanne Strickland
2023-06-22 21:00:33 +0000 UTCI wish I was close enough to come help, but I'm near Portland Oregon. You are all in my thoughts and prayersoften. "Live long and prosper", Dianna and all of you!
Mark Dakins
2023-06-22 20:59:43 +0000 UTCI just re-watched some videos of her on quarks and dark matter. she was such a curious, excited girl, who loved to explain the world to others. I really miss her. my thoughts and prays are with her. please be strong, don't give up, fight, there is alway hope
anti.gravity.in.motion
2023-06-22 20:56:49 +0000 UTCThank you again and again for your comittment to Dianna. We all cannot wait to see her cheerful videos again. But right now recovery is so important, I hope these baby steps will become bigger and bigger soon.
Christoph S.
2023-06-22 20:56:30 +0000 UTCSo much love to Kyle and Levi, I cannot imagine how difficult it is to see someone you love so paralyzed. For all its worth I'm sending you all my love and energy to help you through this tough time. We will have Dianna back no later how long it takes xxx
Simon Tapley
2023-06-22 20:55:27 +0000 UTCThinking about you all. You got this, Dianna.
Luis Torrefranca
2023-06-22 20:54:04 +0000 UTCGet well soon Dianna!
Fundamentals of electric circuits
2023-06-22 20:53:46 +0000 UTCYou guys are doing an incredible job caring for your loved one. Wishing everyone the best
Carolyn
2023-06-22 20:53:29 +0000 UTCI hope there is serious research going on into this! Get better Hun!
Dale Allen Platt
2023-06-22 20:51:45 +0000 UTCContinuously praying for your full recovery. 💕🙏🏽💕
Kim Ferguson
2023-06-22 20:51:09 +0000 UTCSending all the positive vibes I have. <3
Tiffany Kinney
2023-06-22 20:51:00 +0000 UTCIt is so, so, so good to see you! Even masked, I can tell it’s Physics Girl! Our bodies are “fearfully and wonderfully made”, and have enormous healing powers. I pray you improve every day.
Mel Beckman
2023-06-22 20:50:29 +0000 UTCDianna has been such a ray of sunshine in my life, I hope that somehow that bounces back to her from all of us, while she needs it.
MARY BOWDEN
2023-06-22 20:50:00 +0000 UTCWishing for a healthy recovery in time 🙏
John Stutz
2023-06-22 20:49:56 +0000 UTClots of love and hugs for everyone, stay strong, we support your efforts
Victor Lopez
2023-06-22 20:49:29 +0000 UTCThank you Levi for helping with her care! We all wait with baited breath to hear about even little moments of normalcy. How difficult to live through, but she is truly loved by many. It is hard to imagine how one goes through the daily monotony of not providing stimulation to prevent a hard crash. One has to become a zen master to do it well.
Tom Schroeder
2023-06-22 20:49:02 +0000 UTCSending Dianna, her friends and her loved ones , our best wishes and hopes for her body to recover.
Victor Lopez
2023-06-22 20:48:41 +0000 UTCThank you for the update and your commitment to Dianna. Her awesomeness attracts so many wonderful people and it’s comforting to know that she has such a great support group. Sending strength and hope to you all!
Koren Taylor
2023-06-22 20:48:20 +0000 UTCEvery day we think of all of you and pray for your strength and Dianna's recovery.
Timothy Williams
2023-06-22 20:48:03 +0000 UTCI’m so glad you’re there for her. The boredom must be as bad as the pain. I hope that clears up soon, and she can find things to engage her beautiful curiosity with. Get better, Diana.
jennifer Feldman
2023-06-22 20:46:20 +0000 UTCI have to believe the brighter times will come again, that your body will come back into alignment with your vibrancy! Pulling for you aways,💕
Sy Lighthill
2023-06-22 20:46:02 +0000 UTCThank you so much for helping her out. Diana and all of you please hang in there. I’m know you will get better.
Daniel A Decker
2023-06-22 20:45:37 +0000 UTCWhen she’s ready, there’s a community to help support her emotional needs :)
Kevin Liam O'Donnell
2023-06-22 20:43:06 +0000 UTCThinking of you often!
Mike Pezaro
2023-06-22 20:43:04 +0000 UTCBest of luck!
Jannes Verlinde
2023-06-22 20:37:44 +0000 UTC