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bigclive
bigclive

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A proper Alzheimer's video.

Not my usual style of video, but I've been pondering making this one for a very long time.  The final nudge was finding that some neighbours here may have early onset Alzheimer's.

https://youtu.be/jRltbhRO-sY

If you're nursing someone with Alzheimer's then you may be able to relate to a lot of this.

If a relative is developing signs of Alzheimer's then this could make your life a lot easier in the future.

A proper Alzheimer's video.

Comments

Sorry, should have said that the workers will be "brought down first".

The problem with the collapse is that the workers will go down first.

Man what can I say, watching this reminded me how my father was before he passed. He was a misdiagnosed diabetic for almost 10 years and he had terrible neuropathy and finally dementia. I am at a loss for words. I was very lucky that my older brother was in health care and lived near my parents. I was 4 hours away and my current job had me traveling all over the USA and some times abroad. I made it a point to see him as often as I could but he always thought I was his younger brother that he did not get along well with until the last year before he passed and then he didn't know anyone. I commend you on how well you kept up and did so well making this video. Thank you for getting this out.

Charles Bruckner

When this "civilisation" collapses the liberal freeloaders are doomed. YouTube/BitChute , "That Time a Guy Tried to Build a Utopia for Mice and it all Went to Hell".

There will never be a cure or prevention for Alzheimer's, the drug companies wouldn't want to give us one, they will make far more money treating the symptoms. A cure was found for cancer in the 1930s, (Royal Rife), and then covered up.

Too true. I am not sure if there is ever to be a society that can actually be seen as to be nothing but good. Every time I think I have finally seen a politician that I think might be good, some skeleton is brought out to show the lie. I simply choose the one I think is closest to not going to completely ruin me and mine. One year one of my in-laws went to the tax preparer that we used years ago at the same time we did. My wife and I came out pleased that we only owed a couple of thousand dollars on top of what we had taken out over the year. Then my in-law came out happy as can be because she got an earned income credit(how you can get any kind of earned anything when you dont work beats me), so even tho she was on welfare and did not earn a dime all year, she got a refund of over $4000. Possibly the closest I have ever come to killing someone. And yet our country can't seem to understand that we can't afford more welfare. Hard to believe that a country full of people smart enough to eat breath and steal from one another, aren't smart enough to understand that if you take all the money from the people who are working, sooner or later you won't have people working because it will be worth more to be on welfare than to work. I am at the point where I welcome the end of the world. It needs a complete and total restart at this point. The glitch in the system is too big to be fixed. Complete system dump and hard reset.

We have the same situation here where people breed babies for extra benefits. I believe a country should give priority to maintaining the health of its workers, and when I see people who have suffered serious injuries while working get stripped of all their money by medical companies and then literally tossed into the gutter it doesn't present a good image.

Big Clive

While it would be nice if here in the US the government paid for our health care, one slight difference is that we dont pay anywhere near what you do in taxes with your VAT. There have been attempts at national health care, but considering how much of our taxes already go towards unneeded Welfare(there is, of course, times where Welfare is needed, but not for multiple generations of welfare recipients). People like my wife and I who actually make a decent amount of money yet still cant afford medical for our selves. To think that the US is somehow stupid for not having National health care is only something uninformed people think. And yes I know quite well how screwed up our welfare system is. I have in-laws, who have kids that get a pay raise every time they have another kid. I can not and will not believe that someone on welfare is trying to better their lives when they put out 5 kids yet get pregnant again because they want a girl. So even tho my wife and I make good money(certainly not close to being rich) I cant get medical problems fixed since I cant afford it. The government having to pay more and more peoples way, has raised the percentage for medical cost to be deducted from taxes. Used to be you had to pay 7% of your income for it to be taxe free. Now it is higher, not sure how high. I would happily pay my own medial if I could have it taken off my taxes or even better if I didnt have to pay for people to just keep popping out kids like a pez dispenser to get a pay raise.

Note that the A8 trackers aren't trackers. They're GSM remote listening devices. In some countries they can send back a very rough location based on cell tower vicinity, but not a real GPS coordinate.

Big Clive

Been sitting here for quite some time trying to find the right words but I just can't. Thank you so much for finding the strength to make this video Clive

I made a page about it on my website when I used one with my mum. It gives a good insight into their use. http://www.bigclive.com/gps.htm

Big Clive

Thank you for posting this video. I had a search and the only video I could find on GPS trackers that you made was on the A8. I haven't had a chance to watch it yet but it would be nice if you could make a video about GPS trackers and what to look for. Battery life, ease of use etc...

We did often discuss how the home care probably prolonged her life.

Big Clive

It took your mom long time with alzheimer because of the very speciale care you and your brother give her. I a home the stuff here full with drugs ans she would not have a long time on earth. You are both very good sons how took the responsebility to take care for there mom like she did for you wheb you where babies. Hat off fot you guys

This is so incredibly touching.

Thanks for the video Clive, reminds me of my grandmother who while she didn’t have Alzheimer’s as such her experience of the cumulative damage from recurrent strokes slowly stole the person from her and in the end she wasn’t her anymore, just functioning as a human without anything left that made her the person she was. thanks for sharing

My grandmother started showing signs about 10 years ago and has slowly but steadily declined since then. Funny you released this video now, as she is currently at hospice, and probably only has a couple days left. I forget what medication it was, but we did actually find something that helped for a short while, but like you mentioned, I think it gave her enough clarity to understand that she had alzheimers, so while lucid, it was a toss up as to whether she'd be happy or depressed. Also, like you mentioned, there were seasons/cycles of degradation, then leveling off. However, the vast majority of medication had very little effect, or actually worsened her condition. One thing I would add is that, particularly in women, urinary tract infections (or maybe the antibiootics?), for some reason drastically effect the mood of the individual with alzheimers, for the worse, in my experience. Anyway, thanks for the video Clive; I know many will find it helpful.

Beautiful video Clive. Hats off to you and your brother, beautiful people..

Richard Boyce

Thanks Clive. I lost my dad in the same way. I think I got closer to him looking after him than at any time in our earlier lives. It was a special time. He looked after me when I was a child so I looked after him. And through all the ups and downs he was still my dad.

John Russell

Clive, this video is incredible and you're a great Son. THis video touched me, and it needs to go completely viral, so the world can hear your story from such a earthy and honest angle. It's worth a billion medical guidance leaflets. I know what you mean about just doing what needs to be done. I have helped my Grandfather-in-law go to the loo, and wiped his backside. He was a man that I used to go out drinking with and considered a good friend. Thank you for sharing your story.

mikenco

Hey mates. Lost granny and dad to the nast stuff. Thanks for all yall sharing

Sometimes we're left speechless. Thank you. This is something that terrifies me, but relating your experience is very important, and moving. It sounds like you have a lot of amusing stories about your mother, and it makes me think about my own time with mine. One day at a time.

Miranda Kwee

Thank you Clive.

Tim Albers

World class presentation, BC. I've been through this with one aunt and one friend. Even so, I learned a lot from this. Health care professionals and counselors could learn from your experience and down-to-earth advice.

Well now we know why Clive is so big. They had to fit that heart in there.

Michael Thompson

Wish you had made this 20 years ago it would have helped me make sense of what was going on. Thank you.

Thanks Big Clive

I really appreciate this video Clive. My MIL is already in the middle stages. Unfortunately she lives 400 miles away and is resistant to moving near us. Her only support is a couple of siblings that are intent on stealing as much of her money as they can.

What an amazing video. You even made my missus cry. Fantastic education from someone first hand, and brilliant information for dealing with someone who it affects. Keep up the brilliant work Clive. Your mum will always be proud of you and Ralf.

Honest, heartfelt and informative.

Thank you Clive for taking the time to share this even though it wasn't easy. This kind of straight forward discussion is important for people facing this.

Steve Brecht

My mother died from cancer, started out as breast cancer that spread. It was quite awhile after they found the brain tumor before she had any mental symptoms. But as time went on it got to the point that i stayed home taking care of her. She was mostly independent but could not drive. After i turned 17 i got my ged and enrolled in college. We had home health come because i would not be there as much. I started college that week, friday night she passed. It felt like she held on until she knew that i was ok to make it on my own.

Thanks Clive for your insight and experience in this all to common disease. My mother-in-law is going through this right now and I learned a great deal from your vid.

Jeff LaHay

This video is a real service to the community of humanity. Your electrical videos are informative and amusing. But this one is a real service and value on a whole different level. This is a subject that should be close to us all. Thanks, Clive.

Lilla Gubben

Your mom was lucky, that she had raised 2 such good boys. ...Here in Denmark, you often gets handed over to system when you´re "defect", cause relatives are "too" busy... I´m not looking foreward to eventually being hospitalised and/or being degraded from human to just another on the list... You and your brother did good. ...Hats off! 👏 My daddy died of cancer, and I sat by his side when he passed away. ...But I was not taking care of him at home. Hats off Clive!

Sorry Clive but this the first of your videos that I could not sit all the way through. Hearing your dulcet tones talk about something so close to my heart just rings my emotional bell. Our experience was slightly different to yours as my dad looked after my mum and we did our best to look after them both. But he refused to see that her "memory" problem was dementia and they argued over simple things like what they had had for lunch or whether she had a doctors appointment coming up. Long story short, I can sleep soundly at night knowing that that my mum's last 5 years were safe and happy in the care home. I had gone from being son with name, to son no name, to husband no name, to brother no name (she was an only child) to finally just a friendly face who visited. She always smiled at me and she is/was always my mum, Doreen. There were signs of dementia in my father before the MI got him (unfortunate problem in the male line of our family) so I've had a DNA test (oh well). Ok I admit I'm a bit of a hoarder. Given the varied dementia experiences, in the UK I recommend looking at protectstudy.org.uk which is endeavouring to collect data on this destructive disease.

Demolished Man

Thank you very much for this video, Clive. It's one of the best treatments of the subject that I've seen. So much of the information that is out there - even for the family and caretakers - is focused on scare tactics; it's good to see a calm discussion from a realistic standpoint, from someone who has been there.

Thanks Clive.

Nuts 'n' Proud

Stunning, most things I've seen and TV portrayals seem so negative. Your actually upbeat and positive, even humorous.

Ian James

Thank you for being so incredibly honest and open about what I'm sure is a difficult subject to speak on.

Well done for putting this one together, Clive. It's not an easy subject but you've helped by letting people know they're not alone. I saw my Dad decline through vascular dementia after he started getting lost while walking the dog (luckily the dog knew the way home) I hope the advice is useful to other folks, too.

Phil Collins

Thanks Clive. It's helpful to be reminded that other people have been through or are going through this. My mum is still aware of what is happening and is is constantly apologising for being a burden and a nuisance. As you said, none of it is easy.

Lawrence ORourke

All I can say is, "Wow!" Thanks for this. You and your brother are definitely saints. This video should be included as part of some Alzheimers' Support organization's media. It could have maximum impact there.

Rocco Rizzo

Clive. Thank you. I am sitting here with tears in my eyes listening to what really is a story about two sons love for their mother. Again, thank you.

Thank you for sharing your story, my Mother is also starting to show early signs (difficulty to find words), so I will probably have to face that in the near future as well... it helps to hear about the experience.

Kevin Bornewasser

Thanks BC for this. It is very well done considering how difficult the topic. It still scares the piss out of me. I don't know that I could handle being a caregiver. I definitely couldn't handle being the one cared for. I guess it's not something we choose, either way.

Nani Isobel

Thank you Clive. You got a big heart!

Lovely, heartfelt and informative video, Clive. Thanks for sharing. Yours weren't the only eyes to shed a tear.

I second Jrandom Bob’s comment. When I was rather young, I had watched my grandmother slip gradually into her dementia via a number of strokes she had. It started with her speaking fluidly between English and her native tongue, Hungarian. She then progressed further down the path exhibiting many of the same traits your mother had. She lost use of her limbs and required either myself or my mother to feed her dinner (she refused to have the 24 hour nurse we had for her feed her). The scary thing is, I’m starting to see my own mother show the same symptoms. I know how hard it probably was to put this video together, but hopefully someone will find your advice and it will help them through a difficult time. Thank you for posting this. I’m sure your mum would be proud. 🙂 :hug:

Ginger Spice

One of my brothers died of Alzheimers at 62. Having seen what he and a couple of other people went through I have notified my family that I will have an accidental overdose the day after I get diagnosed with it. I am not going through that hell.

Mark Trombley

With my mum, it was putting random things in the fridge.

B3

Having watched my Grandfather's slow decline from Dementia (Vascular Dementia due to a number of strokes he had following a triple bypass operation), I appreciate the effort you have put into this video. I'd like to re-iterate your comment "spend lots of time with them", this is I think the most important thing, because it is pretty common that sufferers will suddenly decline. Whilst we kept him at home as long as possible eventually it became too much for my Grandmother so we had no choice but to move him to a care home, fortunately in my home town there is a very good care home which specifically catered for people with Dementia. I dearly hope that one day we find a cure, because having seen his decline, it is not something I would wish on anyone. One of my strongest memories is the frustration he experienced in the early stages when he was starting to lose the ability to communicate, I can't imagine anything worse than slowly losing your ability to interact with the world and effectively getting locked up inside your own head, the prospect frankly, terrifies me.

Jrandom Bob


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