Medical Update

Sooooo I got my CPAP.... Unfortunately I've been having a lot of trouble with it. My first night was a bust. I tried to use a Nasal Mask and quickly found out, I like to open my mouth when I sleep. Couldn't even fall asleep with it on.

Went a night without it after that, while I waited for the Full Face Mask to arrive. That finally got here a couple days ago. I tried to sleep with it. The mask might've been a bit small for me, but nevertheless I was at least able to sleep with it. However, I woke up constantly with it on and had the worst night of sleep of my life.

Moving to the next day, I decided to sleep without it again, while I waited for the next size up to arrive. Sleep was a bit better, but I still woke up a lot. I felt more rested though without using my CPAP than with.

That first night was so incredibly bad I've been taking it slow. A friend of mine found a post suggesting to get used to CPAP I should just wear my mask throughout the day for a couple of days.
I'm currently in the process of doing that.

After I get used to it just being on my face, I'm supposed to step up to using it, while it's connected to my machine and pumping air throughout the day. And when that finally feels normal....to spend a night with it or take a nap with it.

Soooooooo

I'm really bummed that, instead of helping me, CPAP has actually hurt more. But, as I've read online, it can take months to really fully acclimate to CPAP Therapy. But once you do, it is a world of difference.

I'm trying to stay positive, but it's been hard. I have bad days and good days with all of my symptoms, and with no signs of any improvements.

Appointments

I have a physical therapy appointment September 3rd....I really don't know what they'll have me do though, as I still don't have a diagnosis.

But my MRI for my Neck and Upper Back is on September 10th. I hope so dearly that the MRI can finally give me a diagnosis and send me on the road to recovery.

Neurology Appointment on September 18th...I don't know what will happen with that really.

Frustrated

It sucks not knowing how to get better. Rest isn't enough....Exercise doesn't help.....Diet and Vitamin Supplementation has had little, if any, effect. I feel like I've been running around for 4 years just trying to heal.....but I can't. I need medical help, it just sucks it's so slow.......

My symptoms are scary and I haven't really been able to draw, play games, or live my life outside of hanging with family or friends and talking. I've been crying more than I have ever in my entire life. I am so grateful for all of you, my family, and certainly my friends. I don't know what I would've done without all of you. Thank you, from the bottom of my aching soul.

THANK YOU <3

I really wanted to have good news to share with all of you. I really did.....I'm so sorry that things are like this. My content will be slow, but I'll be here. I've had people reach out to help with my content drought.... and I'm so thankful. I'm trying my best, but all I can manage is maybe an hour at my computer these days. I can't thank you guys enough for sticking around. The moment I'm better I will repay you all...I promise.....